Thursday, February 12, 2009

Thank you!

Thank you!

Thank you so much for the outpour of love and cheery notes the past two days! I am in awe at the power of family and friendships, new ones too in the wonderful world of blogger land.

Yes, the road will be tough for the next few weeks worrying about my husband, but I have to admit we had been praying for an expedited medical walk as doctors had offered for our move here. And it came! And it came all within a 48 hours period to knock our socks off. But, God is good! He knew exactly what all of our needs would be with our recent move here.

My husband will be given his individualized program later today, but so far his days are full, full, full! Doctors are still conferring and awaiting CDs of previous various CT scans, xrays and other assorted testings from both the Chicago and Vancouver hospitals where doctors assigned to his case ordered these, and all still follow him closely (with cc. on all medical correspondence and lab results) for nothing more than its rarity and wanting the best for their patient. The bonds have grown strong believe me! Luckily my hubby says he has a chance to have two small "power naps" and really needs them to feel refreshed for the rest of the day ahead.

Beginning at 7:45am, breakfast is delivered (Club Med (medical) right? wink), so he must be up and showered before then. First thing up by 9am is one hour of breathing classes using spyrometry and other exercises, two hours of education and rehab to learn everyday things in a whole new way to avoid fatigue and breathing difficulties, three hours of physical exercise routines, tests and more tests. Oxygen therapy happens nightly, with plenty of other assorted monitoring.

Next week he will have a CT scan using four positions with lungs inflated and then lungs deflated, something he has yet to have. The purpose of this specific request is to see how the trachea has formed itself with its enlargement, and how the lungs look inside without having to do another broncoscopy. More cardio testing is on the block as the discovery of Pulmonary Fibrosis is present inside the lungs along with emphysema and bronchiectisis. The dormant lupus requires a Rhumatologist to overview the case. And as if that's not enough, all six physiotherapists job is to push their patients within safety zones to get their circulation boosted. So much, but it all sounds so good thus far.

Meanwhile, he lives over an hour away from the rest of us and hardly a visitor will walk through his door. But, he will be tired at night, so maybe that's a good thing. The hospital offers an patient email service and not only prints them but also delivers them to their rooms daily. Offering nothing but cheery, cheery news from people outside of his room will be a super bonus.

I'll be back with more later...but I just want you all to know how very touched I am with the tender messages you've sent to me privately. Thank you. Thank you.